Four months ago today, I called and made an appointment with the doctor for Ryan. Jason and I were sick with concern over the drastic personality changes in Ryan and thought the other symptoms (appetite changes, sleep habits, irritibility, etc) were all secondary symptoms of some sort of emotional disorder/illness.
Four months ago today, I went to Ryan’s Christmas party at school. I walked to his table where he was sitting and got on my knees next to him and put my arm around him. He barely acknowledged my presence, eyes half open, little movement, unengaged in the excitement of Christmas one week away. I loved on him, asked if he was okay . . . he just nodded yes and starred off into space. His teacher came to me, I’m sure noticing I was teary eyed, and said, this has gradually become who Ryan is in class. Disengaged and no energy, like his arms weigh 50 pounds each. She shared her concern in his drastic changes.
Four months ago today, I sat in a doctors office while a pediatrician told me my son was “very sick” and I must get him to Children’s Medical “immediately.” Children’s wanted to pick him up in an ambulance and I begged to take him and pick Jason up on the way. She said his sugar was too high for the meter to read, that his ketones were greater than 1000 and that he was on the virge of diabetic shock and coma. It was the first time I had ever really heard the term “Type 1 Diabetes.”
Four months ago today, I sat in an emergency room with my little boy on a hospital bed, Jason, mom and my other two boys sitting in the room when I heard that we would be spending a few days in the hospital getting Ryan’s sugar down, flushing ketones out of his system and being educated on how to care for our T1 child with multiple daily shots, multiple blood glucose checks (involving finger pokes) and constant carb counting. We would also learn what to do in an emergency situation if his sugar should drop too low and he should have a seizure or lose consciousness. We also learned that his ketones (described to us as poisonous acids) were so high that there would be a battery of testing to show any damage to his kidneys, liver or heart which they prepared us was very likely.
Four months ago today . . . in the midst of fear and chaos . . . God protected our little boy from major organ damage. Doctors came in and said his A1C was greater than 14, but were completely amazed and said it made no medical sense at all that there was NO major organ damage; but it did make miracle sense.
Four months ago today was the beginning of life changes for our family. Changes in diet, schedule, sleeping, traditions (because it did come the week of Christmas and I HAD to change some traditions to avoid the sugar) and more, and we made them for Ryan’s optimum health.
Had someone told me that we would be this far down the road, this much adjusted in just four months, I would have simply told them they were crazy. Yes, it’s still a 24/7 disease. Yes, I still get that sick feeling the pit of my stomach when I think about my son and that he has a disease. Yes, I still have my bad days and stuggles. But we have found a normal. We, as a family, have not changed . . . we have just figured out how to take diabetes along for the ride. And Ryan, he is back to the happy-go-lucky, active, happy, carefree self he was last summer and early fall.
When I think of four months ago today . . . I have so much to be thankful for.