6 months ago today, I sat in an emergency room thinking, “I can’t do this. (through tears and a shaky voice) I CAN’T do this!!” Four shots a day, four to six finger pokes a day (or more), diet management, exercise/activity monitoring . . . basically finding a new normal. After six months, I think we are well on our way to that “normal.” I don’t think it’s perfect, but we’re getting there.
Ryan has, in all honesty, had a few rough days emotionally. His numbers have been really good the last 10 days or so, but I think the regiment is starting to settle in and he’s growing weary of the process. I thought it would be good for him to express 6 things he didn’t like or even hated about diabetes. This way, he could verbalize to me how he feels, so I really know how to help or encourage him instead of shooting in the dark. In his words:
- “I don’t like the shots and the finger pokes.”
- “Sometimes I’m afraid I’m going to pass out.”
- “At night, I really don’t like the bedtime snacks because sometimes I get really tired and just want to go to bed.”
- “I’m kind of mad because I don’t get that much junk food.”
- “I don’t like doing finger pokes before I go swimming.”
- “I like candy but I don’t usually get it that much.”
I, of course, stopped and talked with him about these things. Loved on him a bit and told him how incredible he is and how brave he is and that daddy called him his hero a few weeks ago on his facebook status. Kids are so resilient. He smiled and laughed a little but really just expressed what he thought about the six things listed above and how things are just different now. I agreed and validated those feelings (because we all need validation for our feelings and encouraged him a little more).
Then I told him about a lady that I just heard about on facebook who has a child who was diagnosed two weeks ago. I told him since he was now a “pro” and has lived with D for a bit, I asked for 6 things he would say to that child that was just dx’d to help him/her not be so sad or scared:
- We get to have snacks at school when other people don’t get to have any.”
- Don’t be afraid because the needles aren’t that big and really don’t hurt anymore.”
- We can still have cupcakes and ice cream, we just need to get extra insulin for it.”
- Don’t worry when you go swimming or play outside because you just have to check your sugars; if it goes low, you just drink juice or eat, and then you can go play again. “
- Sometimes you get tired of checking sugar or getting shots, but it’s really okay . . . it keeps us healthy.”
- And now we get to wear cool bracelets. There are a lot of people who wear blue bracelets [JDRF jelly bracelets] for me . . . all of my family and even mom and dad’s friends.” (Giggle) I kinda get more attention that way.” (BIG DIMPLED GRIN)
And then Ryan said, “So I guess diabetes isn’t THAT bad. And I’ll get a pump soon to make it even easier.”
Have you ever heard “out of the mouths of babes . . . ” Ah, if I could only maintain his positive attitude.
If you had told me 6 months ago we would be where you are today, I would have told you that you were crazy! But as it is . . . here we are!