Embracing Life & the Child with the Disease

It’s Been Too Long

It’s been two and a half years since I have blogged.

Some things haven’t changed: Ryan still has diabetes, he is still a champ in dealing with it all and we still experience on a daily basis the highs and lows (pun intended) of the disease.

But some things have changed: we are now Dexcom Share users (for those who do not know, it helps monitor Ryan’s blood sugar by measuring the sugar in the interstitial fluid and gives us readings and trends every 5 minutes that I can see on my phone!), we accept the fact that we can’t control as much as we once thought we could (the complexities are insurmountable at times and our best is simply our best and we try to be happy with that) and Ryan is nearly in junior high and we are entering a new world of HIS opinions regarding his care and new frustrations in the “stop ‘n go” of caring for the disease.

Sometimes, in the madness of the disease mixed with the growth hormones, stress hormones and “becoming a man” hormones and adding the life-saving hormone of insulin creates a perfect storm on all levels.

But we deal. Experience new things. Try new basal rates, IC ratios, correction factors and bolus extensions to continue to keep life as normal as possible and at the same time keep him healthy. And sometimes we just cut our losses and try again tomorrow. Because diabetes will still be here tomorrow.

But the “too long” means that maybe doing this alone, without my wonderful d-moms and diabetes community, maybe isn’t the best idea as we hit in full stride, the tween years.

And I’m finding … I still need my d-moms.

 

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